The mischievous grin spread across his face as he slides his tiny socked feet into my 2 ½ inch heels. He doesn’t think I see him, but I do. Daddy warns, “Drew, those aren’t your shoes.” His grin widens. I say, “If you can walk in ‘em, you are welcome to wear them.” He laughs, tries to stand up and looks at the heels. He considers for a moment, locks eyes with me, and then tosses them off his feet, grabbing for his Lightning McQueen sneakers instead.
This is my son, the one who tests boundaries, has the personality of a Hollywood celebrity, and makes us laugh constantly. He is full of personality, vitality, enthusiasm for everything….and yet in just two weeks I will be in a room with close to a dozen professionals spelling out everything that is wrong with him.
IEP meetings are one million times worse than the dentist. You still feel like someone is pulling your teeth…wrenching out the largest molar, hoping in the end to bill you an unfair amount for pain and torture. You sit there with people who think your child is broken but not in a way that impacts his education. They try to wrangle free of the burden they have to educate him in a fair, free, and appropriate manner as per the law. You, as his parent and advocate, have to link his shortfalls and how it impacts his education and, much as a lawyer would do, make a case for money to be spent on your kid. It is emotionally taxing to a degree I would never wish on anyone, yet the parents who undergo this torture are usually the ones already exhausted from working with their children and carting them to and from therapists and doctors.
We aren’t one of those families. We are blessed to only have some minor speech delays and sensory processing difficulties. Minor, but still obstacles to learning that will prohibit our success in kindergarten. While I thank God for the progress Drew has made, I get ill this time of year. He is the type of child who is left behind. He is the one who gets the amateur teacher who thinks he has a behavioral problem and punishes him, as is happening right now to a friend’s child, by placing him in a dark closet. I have to fight for him because he is making such fantastic progress and we can’t pull back now.
I have tried to go to work after previous meetings, but this time, I will not. I’ll spend time with Andrew and pray he never knows all of the negative things I have to say for this process to work for him. I don’t know if we’ll win…a few friends with similar situations have been denied in the last week. I have already printed the paperwork for decision mediation and a legal due process hearing…the next steps we’ll take if denied. I’ll set them both down in front of me at the small table…to show them that I’m serious.
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